So yes, the THING is still getting smaller. I don't have a number (how unsatisfying!) but I saw the MRI scans and it is definitely smaller. not as big a change as last time, but it's still going in the right direction! Good (great) news!
There also was not a lot of swelling or inflammation - which I was glad to hear. I thought there might be since being off the steroids. Good news!
So then the big question - can we go to London? He said no problem. Good news! For those of you thinking - is that a good idea, won't the pressure of flying make your head explode? Cabin pressure is set to the equivalent of 7000-8000 ft above sea level. Would you be ok with me driving to Santa Fe New Mexico (ele 7260 ft)? What about being in a foreign country while ill? We speak the language; they have good, modern medical care; I bought a travel health insurance policy (if you take the umbrella, it won't rain!); I have email addresses and home phone numbers of my doctors; and my cousin lives there and can help us navigate the health system if needed. We've covered about every base we can and like Dr. Rose said the first time I met him - 'don't let this thing dictate your actions - live your life'. So we are living. We still welcome your prayers for safe travel though!!
Unfortunately there are 3 people who are close to me who have not received news that is as good or hopeful in the last few weeks, regarding serious medical issues. I ask that you remember them, and pray for healing if that is what is meant to be, and for peace for them and for their families.
Summer research started this week so I'm back to work daily. I have 6 bright eager women who are a joy to work with. But wow I forgot how tiring it is to go to work every day! =) I was asleep by 8 pm on Friday night! It feels good though and the girls are working hard and some good science is happening. Some days I only make it a few hours, but it is good to be back!
So where do we go from here? Drs. say the most improvement from brain injury happens in the first 2-3 months post event, but there can be substantial (but slower) improvement over the next 6 months - year (and even longer). So we've reached the plateau phase. I won't get another MRI until Dec and won't see a Dr. for 2 months (!that seems unbelievable!) unless symptoms get worse or something. I will continue with physical therapy and keep working on that stuff at home. I fully expect to keep improving and thank you for continuing to THINK SHRINK - it isn't gone yet. We still have some work to do.
Lisa! I like Dr Rose! He has the right,educted philosaphy on life. Hope your symptoms are minimalized - with Ben, Mon and Dad watching over you you can enjoy every minute of your trip. I wish you all a fantastic time! bernie.
ReplyDeleteLisa, I'm sorry to hear about your condition. I have alot of your same symptoms but I have been diagnosed with bilateral vestibulopathy. I also experience vision issues, dizziness/balance issues and increased fatigue. I wish you luck and quick healing.
ReplyDeleteDebra Lentsch
I'm so glad to hear things are improving. Enjoy your trip!
ReplyDeleteTraci Walkup