Tuesday, April 2, 2013

team sports and nothing happens on the weekened

The very wise Ms. Rosemary Hook, who has spent more than her fair share of time in hospitals and dealing with Dr.s this year, once told me 'don't ever get admitted to the hospital on the weekend because nothing happens on the weekends'.  Getting discharged on the weekened seems to have the same effect.  My attending physician Dr. Gowda was not there on Sat. but her resident wrote a scrip for outpatient rehab (physical therapy).  My nurse tried to get an appointment set up but, no one there on the weekened.  She said she'd email the hospital case workers so they would have my info monday morning and could get it set up.  If they hadn't called by 10 yesterday I should call and remind them.  They hadn't, I did, they had no idea who I was and said I needed to call myself since they don't know my schedule.  So I did and got machines and instructions to 'send the referral first'....no progress.  So still waiting to set that up, trying to get Dr. Gowda back on the case.  If that doesn't work my primary care Doc gave me his home number and said to call if we need anything especially if we are getting the run around, he would be happy to intervene.  He's awesome. Yay Dr. Stonecipher (his son is an SEU student too).

Meanwhile back at the Ranch - we are getting good at team sports: team laundry, team dishes, team cooking.  Good thing I married such a sports nut!  He says  "Man its exhausting being you!" lol its true that I am not very good at sitting still - there are always things to check off the list.  So I'm trying to do better at relaxing and Ben smiles when I ask about the progress on the clothes in the dryer.
lucky # 13
yesterday was our (lucky) 13th wedding anniversary - no foolin!  I guess this is the year we work on the 'for worse' parts of the vows. But we had a good day - longest walk around the neighborhood yet!! And we went out for mexican food and since he knows me so well (and is becoming a flower/plant freak himself) he brought home a beautiful Phalaenopsis orchid to lift my spirits and give me something else to fret over.  I don't have a good track record with orchids but he is determined we can do it.  Team orchid growing.  


How am I doing? You all want to know.  All things considered quite well.  We think we see small improvements, mornings are better, by evening I'm tired and all the bad symptoms seem magnified.  I do pretty well getting around - even went to the grocery store yesterday which i was very excited about! Ben seems to need to catch me less and less.  Is it that I am getting used to my surroundings or is it improvement? I'll take it either way.  We are almost back to our 3 mile walking route around the neighborhood so that feels good.  no pain, I'm very comfortable especially if I don't have to get anywhere very fast.  this morning i got to sit on the porch with a cup of coffee and my two favorite warm blooded mammals and listen to a gentle rain.  I have much to be thankful for, life is good.

2 comments:

  1. Lisa, I just found this via Facebook, read all your beautifully written posts, and I'm still trying to comprehend it all. All I can say now is that you are handling this with inspiring grace. Both you and Ben will be continually in my thoughts. SHRINK THE VASCULAR MALFORMATION!!!

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  2. Happy Anniversary you two lovebirds! Lucky number 13 indeed! We love you very much and send you lots of sunny southern California cheer and hugs ... and know that we're rooting for your team. Brad and Frank

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