stay calm its probably not a brain worm.

Lots of progress on the doctoring front today!!  Went back to see my primary care doc - Stonecipher, who is the most awesome.  He got us connected with physical therapy finally, and got us an appt. for a second opinion with another neuro-oncologist. Although he said his usual go to for a second opinion would be Dr. Rose so we are already in the best hands. Excellent.  He also asked if anyone had suggested cysticercosis  - the

larval form of the pork tapeworm which cysts up in your brain for years before hatching and eating your nervous system into swiss cheese - look at that!! common in the part of mexico i frequented at least 2x a year for my whole life (hello Rocky point!!).He talked to his infectious disease doc friend who was intrigued (I'm like an epidsode of House!) and wanted to see me today. So off we went.  He thinks its highly unlikely its a worm he said you'd actually see the little bugger in the MRI.But its a simple blood antigen test so easy to do and rule out. more waiting.  I must admit i was a little let down it wasn't a brain worm.  I mean talk about a good story to freak out my students. I was having Wrath of Kahn flashes.

Also saw the dermatologist and she says all my moles are happy moles so melanoma is not really on the radar.  she did one biopsy on a dark freckle to be extra careful. more waiting. no more appts til next weeek which is ok.  I continue to feel pretty good in the mornings tired and more symptomatic by evening.  ben thinks the balance and getting around continues to improve.

i have heard from so many wonderful   friends in the last few days - your words of encouragement mean so much.  I know everyone wants to DO something (I get that!) but really just hearing from you is such an emotional boost and just what i need.  I try to respond to everyone but if i miss you it's not because i didn't notice I'm jut inundated with love. And i love you right back.