Tuesday, April 16, 2013

gratitude and good posture

thank you.  Those words seem so incredibly small these days.  I don't know that there are words or actions large enough to ever convey  fully the appreciation Ben and I feel for all of you.  We have been so loved these last 2.5 weeks (has it only been 2.5 weeks??) - gratitude, gratefulness, thankfulness, appreciativeness, our hearts runneth over and we say thank you thank you thank you again and again for all of you.

Literally our mail box, email and facebook inboxes, texts runneth over.  And your thoughts and prayers are my favorites - they really make my day and put things in perspective.

Our fridge, freezer (and our neighbors freezer!) overflow with tasty vittles that have made heating up a quick dinner and satisfying a sweet tooth so easy (maybe too easy!! I have not resisted your tasty wares).

Our plant stands and vases burst with beautiful blooms that also smell good and I can never get enough of looking at plants.   They make me so happy.

Our colleagues at St. Ed's and St. Mikes continue to fill in and pick up for us - what a blessing not to have to worry!! Ben goes in most days to teach his math classes but his after school stuff is covered so he can come home at 3 or 4 instead of 6 or 7.  That is HUGE.  And if he needs to take a day off to help me that hasn't been a problem.

Me?  I continue to notice small improvements.  My taste is BACK!  I'd say like 90%. Thank goodness.  I don't think I would ace any Gordon Ramsey palate challenges but everyday eating is a happy thing again.  Most importantly the symptoms are not getting worse and there are no new symptoms.  That is good news.

I saw a new PT yesterday (5 min from the house no Austin traffic to contend with!!) who pretty much agreed with the other assessments.  They have always been trying to decide if my left sided uncoordinatedness is a strength thing or this not knowing where my limbs are in space.  Still seems the latter, strength wise i am pretty balanced except for my left shoulder; she also discovered that I carry that shoulder up and foward and that bad posture seems to exacerbate my uncoordinatedness.  When she got me aligned I could do fine motor tasks better.  How strange.  So kids when your mom (or piano teacher - thanks Stella!) tells you to sit up straight you should listen!! Probably this is something I've done for a long time not brain lesion specific but hard to know for sure.

This week may see the return of the last of the CSF tests and all those blood tests.  I assume that will all be negative and we just continue waiting for MRI on the 29th.

Tomorrow I will have lunch with a dear friend and Friday I have 4 students presenting at the annual SEU Symposium on Undergraduate Research and Creative Expression (SOURCE) - they will do a great job.  Its so nice to have a few normal things to look forward to each week. 

SVTM!!

5 comments:

  1. Lisa - So happy to hear you are feeling the love - you deserve it! Love the pics you included and so great to know your taste is coming back. I am sure your positive attitude has helped you through this - I so admire your spirit! And I'm sure Moab is thrilled that you are home spending more time with her. BTW, does she like to dress up? Maybe a bowtie? SVTM! - Becky G.

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  2. Hi Geese! Thinking about you all the time. Such good news to hear your taste is back and your other symptoms are not getting worse. I think that thing is shrinking and you will be back to normal in no time! Take care, Erika

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  3. I have been following your blog very closely. I think what I have noticed most, is your sense of humor. I really pity those without one. Laughter makes things , and situations so much easier to handle. My encouragement and love to you, and Ben . Aunt Daisy Duke . :)

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  4. Hey, it's Dianna!

    I just heard about what's been going on. I text Coach Ortiz and he told me about your blog. I am so glad to hear you aren't in any pain. I'm sure it's hard to be waiting and waiting. When I read the blog about coach Ortiz saying "slow down turbo" I totally read it in his voice, he would say that to us all the time! haha. My family and I are praying for you!! Stay strong and God Bless you and Coach, and your family. (:

    <3 SVTM!

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  5. Loving this good news. Keep it coming!

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